Redemptive Creature of Pain

Deep within lies a slimy, pathetic Monster writhing in pain. We all know him. His own worst enemy, is he, only conscious of misery. He cannot see beyond himself. Pain lingers about him, like so many tangled wires jumbled in static giving off fumes.

Pain is his cousin who never goes away only to be dealt with in twisted anger, self victimized, ostracized. Unreachable, untouchable, unworthy of redemption, he refuses to break through his self-imposed barriers; believes he is helpless
against the invisible foe.

Pain is unacceptable, not a legitimate entity. Pain has planted thorny swords of barbed wire, preventing easy access. Pain wrapped in self loathing cannot move or grow. Tears of self pity, cover him like unshakable slime, his fears convincing him the pain will not desist. Self-flagellation wounds ooze thickly. He tells himself "it's all I am meant to be, just pain"

A most despicable Beast, unworthy and shamed,
is but one who needs tender love and healing nonetheless. Dear Beastie, I come to you, my hand outreached to comfort,
yet, you stab me with your lightning bolts, unwilling as a cowering porcupine. You can only unleash your pain yourself, I see. Did you know I was once like you?

By soothing voice, I sing to you. By soft-coated whispers, I encourage you to breathe, and unwind the chains you have wrapped about yourself. Hiding in the poppies to cover the pain, locked you further away from the truth of you, brought increased harm and alarm and no remembrance of who you are.

And so, I calm my mind, my aching heart, my stress-filled body to accommodate your need for undivided attention, your need for redemption from your false beliefs to embrace what I once thought was the enemy. Without your spiky armor, you appear quite harmless.

With your oozing wounds placated, your tears dried away, you are quite a cuddly creature and purr readily when petted.

~~~~~~~~~~~

Dedicated to the dark within us all.

Dangerous Friend

Steroids save my life,
stop the fantasies
of giving up,
prevent me
from the anguish
of pain
return to me
the skill of ambulation.

Steroids are my dangerous friend.
They make my heart pound
like an angry wind at the door,
but I love how well
they make me feel!
I don't want them!
Osteoporosis results, they say.
I don't have enough
cortisol of my own
to do the job.
I don't want them,
but I need them.

They're like a
Jesus healing
at the big tent,
all the folks in wheel chairs
brought up on stage,
then they dance a jig
down the aisles.
Praise the Lord!
Praise the Lord!

I don't dance jigs
nor go to tent preachers.
I've got the best healing doctor.
With a needle in my spine
filled with steroids,
I can ambulate
down the hallway
without my walking stick,
get in the car and drive
Next weekend I will
assemble the sun shade canopy!
Praise the Lord!
Praise the Lord!

~~~~~~
Note: Picture is from the Turbo Squid website.

Shenandoah

There are certain voices that, when you hear them, evoke a response deep in your psyche. They cannot be ignored. I had carelessly uploaded a mix of new music to my IPOD, and while taking my walk yesterday, Harry Belafonte  began singing Shenandoah. (Who's Harry Belafonte you may ask?)

Shenandoah plucks my heartstrings, a piece of music about a river valley,  brings up long lost thoughts and emotions for me. It wasn't that I remembered a bad time. No, it brought up a poignant memory. Childhood walked beside me singing her heart out to Shenandoah and Harry Belafonte. Nostalgia breathed it's way up my nose and tickled like dust. What a strange sensation! But, that is what brought the tears and I almost lost it right there on the sidewalk in my own neighborhood.

I stood there a moment to collect myself. My childhood instinct said to run! But, there is no way to run back home. My childhood home no longer exists.

Should I turn it off? Change it to another selection? Or suffer? With the flood of joy enveloping me while my legs melted into jelly, I decided to suffer. After all, there is healing in music. Belafonte's Mr. Bojangles, and Matilda soon gave me a more grounded and upbeat experience. I soon made it home uplifted in spirit.

I have a theory. Sometimes life gives you what you think is more than you can handle. But, try running away from it, and it just follows you. Hide from it and it will find you. What we are supposed to face, will face us off, unless we will ourselves to turn to it, embrace it and heal ourselves in the process.


Oh, Shenandoah, I long to hear you,
Away, you rolling river
Oh, Shenandoah, I long to hear you
Away, I'm bound away, cross the wide Missouri.

Oh, Shenandoah, I love your daughter,
Away, you rolling river
Oh, Shenandoah, I love your daughter
Away, I'm bound away, cross the wide Missouri.

Oh, Shenandoah, I'm bound to leave you,
Away, you rolling river
Oh, Shenandoah, I'm bound to leave you
Away, I'm bound away, cross the wide Missouri.

Oh, Shenandoah, I long to see you,
Away, you rolling river
Oh, Shenandoah, I long to see you
Away, I'm bound away, cross the wide Missouri.

Terminal Healing

When we come into this world we act out as freely as we want to. As time goes by, we get messages from others that to freely express ourselves is not okay.

Whoever said one must be a "good" (insert name of disease here) patient? What the hell is that anyways? If we be "good" does that mean we get to stay on this planet longer?

I know that there is a LOT of rhetoric about not "being negative" and  "keeping a positive attitude" will help one to have good health and survival. Oh and don't forget organic vegan lifestyle. If you didn't eat it before how is it going to take over and heal you? If you ate it before then why did you get sick? Maybe you like that style of food. But, wouldn't a hot fudge sundae be nice?

If is true that not thinking positive, having a negative attitude, not eating certain food, then I would have been gone a long time ago, because I was a very "bad" cancer patient. My inner child was pissed off. I went against the rules every chance I got, kicking and screaming and swearing at nurses (well, some of them deserved it) and telling people out loud that I had the forbidden "C" word and I was going to die.

Whoa! But those doctors were wrong. Maybe I was close to dying (had two Near Death Experiences), but no one can predict your future, really. Not even a doctor.

I was obsessed and talked about the "D" word to whoever I could get to listen. Most would get out of it, but some were cornered and I probably scared them to death. Those were times when the C word or D word were not discussed. 

I wrote out my will, I don't know how many times. Well, that is, every time I had a recurrence. I really didn't have much to leave, some books, some artwork, some poems, some favorite things. I wrote it out with pencil and paper from a 3 ring notebook; one time leaving my art to my sis, next time to my brother. There was something cathartic in it for me.

Realizing I didn't want a "funeral", just a "wake", a party maybe, where people would play all my favorite music, (wrote that in the will, too) and I went around making people feel uncomfortable when I told them, "Don't buy flowers for me after I am dead, Give them to me now, so I can appreciate them." What a bad girl I was. I can laugh at it now, but I was pretty indignant back then. Why put hundreds, maybe thousands of flowers on a casket that is put into the ground the day they are arranged? It seemed so selfish to me. Love me now, not when I'm dead!

So, when we come into this world and we are cute little babies, we can get pissed off and scream our heads off and let everybody know just how unhappy we are. And we get away with it. We know what we want and when we want it, like, I want that milk, NOW! and yummy that is real good!! and then we are happy for a while, and  then later we are miserable again, or sleepy, or giggly, or sad.... yet free to express whatever we feel. And people love you and care for you and for your feelings.

All I am saying is, I hope you will give yourself the right to feel however you want to feel and don't let anyone else pass judgement on you, and most of all, don't pass judgement on yourself for not being a "good" patient. Be whoever you are!

If it is true that your time on this planet is coming to a close, then why not do what you want? Well, maybe, not use that bludgeon you were thinking of. But, maybe take a stick and beat up the sofa. Listen to the music you want, eat popsicles and pizza or cereal for dinner and pudding for breakfast, wear all mis-matched clothes or draw tattoos on your arm or get out your old Barbies and dress Ken in Drag or your old legos and build castles. And, yes, protect yourself from those who are still stuck in their old ways, if you need to. You have no obligation to keep them in your life. It's your life after all, whatever is left of it, even if it goes long term. Clear out all the things that do not matter to you. It's very freeing to let go.

Take care of that little baby you once were who expressed yourself so freely. And in the meantime grab up all the love you can get for that which is inside you feeling empty, and let it fill your heart until it is overflowing. You will be very surprised as the overflow floods those around you, and whether or not you healed of the disease which might kill you, your heart will be healed with the fullness of love as it grows like a jungle garden. Your love and others intertwined in the leaves healing each other.

Redeeming Pain

Deep within
lies a slimy,
pathetic Monster
writhing with pain.

We all know him
His own worst enemy, is he
only conscious of misery,
he cannot see beyond himself.

pain lingers about him,
like so many tangled wires
jumbled in static
giving off fumes

Pain is his cousin
who never goes away
only to be dealt with
in twisted anger

victimized, ostracized,
unreachable, untouchable
unworthy of redemption

he refuses to break through
his self-imposed barriers
believes he is helpless
against the invisible foe

Pain is unacceptable
not a legitimate entity

pain has planted
thorny swords of barbed wire,
prevented easy access
pain wrapped in self loathing
cannot move or grow

tears of self pity,
cover him like unshakable slime,
his fears convincing him
the pain will not desist.

self-flagellated
wounds ooze thickly
He tells himself
"it's all I am meant to be,
just pain"

A most despicable Beast,
unworthy and shamed,
is but one who needs
tender healing, love nonetheless.

Dear Beastie,
I come to you,
my hand outreached to comfort,
yet, you stab me with your lightning bolts,
unwilling as a cowering porcupine.

You can only unleash your pain yourself, I see.
Did you know I was once like you?

By soothing voice, I sing to you.
By soft-coated whispers,
I encourage you to breathe,
and unwind the chains
you have wrapped about yourself.

Hiding in the poppies
locked you further away,
brought increased harm and alarm
No remembrance of who you are.

And so, I calm my pain focused mind,
my aching heart, my stress-filled body
to accommodate your need for undivided attention,
your need for redemption of your false beliefs
to embrace what I once thought was the enemy

Without your spiky Armor,
you appear quite harmless.

With your oozing wounds placated,
your tears dried away,
you are quite a cuddly creature
and purr readily when petted

~~~~~~~~~~~~

Art created by Xavier Rodriguez

Negative Positive Polarity

.

Negative

I dislike that word immensely when it is used to suggest that it is not acceptable. We do more harm to ourselves by putting that connotation upon our thoughts and actions.

Sickness, struggles and dying are a natural part of life. If we call that negative, then we are negating ourselves  and all of humanity for experiencing them.

It is okay to say that cancer sucks.

It's okay to say the pain (physical as well as mental) is unbearable.

It's okay to say, "I'm afraid".

It's okay to say, it is time to call hospice.

It's okay to say the truth of what you are feeling without any shame, remorse or guilt. When other people judge us as being too negative about our cancer experience because we aren't fighting hard enough, or succeeding in being healed, they don't know what they're talking about, even if they are our nearest and dearest beloved one.

The worst thing anyone ever said to me during the times when I was barely hanging on, was "If only you believe it, you will be healed!" Not only was it unkind, but damaging.

It made me question whether I had a right to survive, because maybe, I was not trying hard enough, not doing it right, not keeping myself positive, not praying hard enough.

When I see people I care about struggle with these concepts I cringe. Dealing with the diagnosis, and bearing the treatments is enough for us to experience the totally of our humanity.


When we are in the pit of despair, it is okay to say it out loud. "I am in the pit of despair."

"I don't know what else to do."

"I'm not giving up. I'm just facing reality."

Keeping the "negative" feelings stifled is like a cancer in itself.

Shedding myself of these beliefs gave me the right to live whatever life I was to have in freedom. I was released from worrying about other people's judgment on how I was coping with my cancer, and relieved of the guilt I felt that somehow I deserved the cancer, that somehow I wasn't doing things right. That I was wrong to my core.

Once I accepted it's okay for me to voice my personal feelings, first to myself, then to others, whether they agreed or not, that heavy cloud of self-doubt disappeared. Accepting my real feelings, understanding them as a natural part of life, just like falling in love and giving birth, the sun shining and rain falling from the sky is what helped me to cast off the concept of judging myself for what I was experiencing.

I have had four people in my personal life, who have dealt with cancer in the past few years. One of them died. She fought for her life valiantly, and she was very good at expressing her emotions, whether anyone thought she was being negative or not.

And I daresay, anyone who could possibly believe that one dies of cancer because of expressing one's true feelings will one day understand the error of their judgment, if they should happen to be diagnosed themselves.

I like this definition of Negative:

Electrical polarity (positive and negative) is present in every electrical circuit. Electrons flow from the negative pole to the positive pole. In a direct current (DC) circuit, one pole is always negative, the other pole is always positive and the electrons flow in one direction only. 

Both are needed for the circuit to be complete, to be whole, to flow.


Those who attain perfect wisdom are forever inspired by the conviction that the infinitely varied forms of this world, in all their relativity, far from being a hindrance and a dangerous distraction to the spiritual path, are really a healing medicine.

Why? Because by the very fact that they are interdependent on each other and therefore have no separate self, they express the mystery and the energy of all-embracing love. Not just the illumined wise ones but every single being in the interconnected world is a dweller in the boundless infinity of love.

-Prajnaparmita
From "Buddha Speaks,"
edited by Anne Bancroft, 2000.

HATS WITH HOPE

Those who are making every effort to save their lives by undergoing chemotherapy often find themselves without hair. I am only too aware of how many people go through this, both men and women.

Having a nice head-covering can make all the difference in how one feels going through the process of healing.

I've enlisted some friends to join me in crocheting hats (made by creative hearts), and given with hope that they will bring some happiness to the wearer. I began crocheting again after not having done it in decades. Since my daughter has been crocheting her many projects and her beautiful crochet jewelry, she inspired me to begin on this project of my own.

I have been crocheting hats now for 3 months, and have finally delivered some to my local oncologist's office, where chemo patients were being treated that day. It captured my heart to see the smiles on faces as they made choices from some of the hats I made.

Wishing you all health, hope and happiness! May there be healing!